Patient Reported Symptoms, Concerns and Provider Intervention in Patients with Multiple Myeloma
BethFaiman,PhD,CRNP1; PaulJacobsen,PhD2; GregoryGarber,MSW,LCSW3; Alyssa M. Cadman, BSW3; Stephanie Chapman, RN3; Nadia Still, DNP, RN4; SarahLena Panzer, BS4; Karen Hammelef, DNP, RN4; Carrie Stricker, PhD, RN4 , Rachid Baz, MD2
1Cleveland Clinic Foundation (Cleveland, OH);
2Moffitt Cancer Center (Tampa, FL);
3Sidney Kimmel Cancer Center at Thomas Jefferson University (Philadelphia, PA);
4Carevive Systems, Inc. (Miami, FL)
Multiple Myeloma (MM) treatment is undergoing rapid transformation. New agents and regimens create an increased need to proactively screen for, assess, and manage patient reported symptoms and concerns. The Carevive Care Planning System (CPSTM) captures electronic patient-reported outcomes (ePRO) and clinical data to generate tailored, evidence-based symptom management and supportive care plans, promoting supported patient self-management.
The primary aims of this study are to, 1) examine provider use of evidence-based symptom care behaviors (education, recommended interventions) in study participants compared to historical controls and, 2) describe MM patient symptoms and concerns.
100 MM Patients from 3 participating institutions will be enrolled in this matched historical-control intervention study. Study Participants use a study- provided tablet in the waiting room prior to a clinic visit to engage with the Carevive CPS. Patient reports of symptoms and concerns then result in an auto- generated care plan which is reviewed by the clinician, who approves or rejects recommendations at the point of care.
This analysis focuses on:
- Symptoms and concerns of intervention participants
- Provider care behaviors for these individuals (determined by which evidenced-based recommendations are retained).
Physical symptoms were highly prevalent; largely of moderate to high severity. Providers instituted both evidence-based proactive and reactive symptom management strategies. Interestingly this included a high rate of acceptance for referrals to physical therapy to manage fatigue, highlighting the recognized role of cancer rehabilitation as a treatment strategy. Even with high symptom prevalence and severity, patient top concerns were predominantly understanding and making decisions about treatment; supporting the need to address treatment education and decision-making support with symptom management.